Our Story

You know him! You love him! He's Julian, a.k.a. Jujupants, a.k.a. the Koolest kid in town! Julian has Koolen De Vries, a rare genetic syndrome that results from a deletion on the 17th chromosome. KDVS individuals face developmental delays, learning difficulties and a number of health concerns. They persevere through these difficulties with an incredible amount of determination and enthusiasm. In short, Julian is a joy. We would love to have you join our team as we raise money for both the Friendship Foundation and our local schools. With the support of both these organizations over the past 8 years, Julian has been given every opportunity to achieve his dreams. We hope to see you at the walk but if you can't make it in person, please consider joining as a virtual walker. You can choose to split your donation between the Friendship Foundation and whichever local school your child attends. Stay kool everybody!!